Released on: May 13, 2008, 10:10 pm

Press Release Author: Joseph May Check The Gate Productions

Industry: Healthcare

Press Release Summary: Something is killing our kids and it's not human.

MPS VI is not a joke. It is a devastating genetic
disease affecting 1 in 300,000 live births in America.
Shafon Faith Seeden is one of them.an 18 year old girl
who wasn't suppose to live this long but who continues
to triumph over seemingly unbeatable obstacles.
The Seeden family is very secure in their faith in God,
and each day the hope of Shafon living a regular life
becomes more of a reality.or does it?

Shafon: An MPS VI Story is a documentary that explores
the many trials that one young lady must face each day. What we take for
granted, she looks at with wonder.


Press Release Body: Check The Gate Productions

FOR IMMEDIATE RELEASE

SHAFON: AN MPS VI STORY

Los Angeles, California
May 13, 2008

Something is killing our kids and it's not human.

Shafon has a rare genetic disorder called mucopolysaccharidosis type six (MPS VI).
Also known as Maroteaux-Lamy Syndrome, the disease is widely variable, but can
affect virtually every body system.
Shafon stands about three feet tall and weighs about 40 pounds. She has severe
hearing and vision impairment and has lost the use of her voice because she must
breathe through a tracheostomy tube placed in her throat.

Shafon just celebrated her 18th birthday. She wasn't supposed to live past ten
years of age so everyday is a blessing. What also makes Shafon special is that she
attends public school, and works two part time jobs. This documentary explores the
life and trials of this extraordinary young woman, while examining the mystery of
her illness. And although her life would never be as fulfilling as we interpret our
lives to be, she represents hope and a never ending search for love and happiness in
a body not of her own choosing.

The Package includes:
-- Event footage and Soundbites
-- Deleted Scenes
-- Trailer

For more information:
Kathryn Melton and Joseph May
Check The Gate Productions (323) 960-1668
www.checkthegateprod.com checkthegateprod@aol.com

Web Site: http://

Contact Details: Kathryn Melton - Executive Producer
Joseph May - Director
Check The Gate Productions
15831 Olden Unit 67
Sylmar, CA 91342
Business Number 818-903-4035
Home Phone 818-933-3144
Fax Number 323-375-0379
Service Number 323-960-1668
Web site www.checkthegateprod.com
Email address checkthegateprod@aol.com